Help 4 Hd Live!
- Author: Vários
- Narrator: Vários
- Publisher: Podcast
- Duration: 148:06:00
- More information
Informações:
Synopsis
Welcome to Help4HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help4HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through a generous communications grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with you own physician for advice about any medical recommendation.
Episodes
-
HD Gratitude Day
21/03/2024 Duration: 08minPlease visit the Factor-H website for more information. Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.
-
Samantha Decker
14/03/2024 Duration: 27minSamantha and I got to participate in a focus group together. Here our thoughts about research and more!!
-
HDYO Ambassadors Series: Ep 1. with Robyn
29/02/2024 Duration: 27minHDYO Ambassadors Series: Ep 1. with Robyn
-
HD Uncut, Ep. 12, with John Howard
22/02/2024 Duration: 26minHappy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry with the HD Community.
-
Layers of Love with Dave, Susie and Erika
15/02/2024 Duration: 43minHappy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses with HD, how they found each other, and how they continue to support one another while caring for their kids with HD. To watch more webinars from the "Rare Topics for a Rare Disease" Series, please visit HD Reach's website here.
-
"We Exist" with Tanita Allen
08/02/2024 Duration: 27minTo follow Tanita Allen, please visit her website: https://tanitaallen.com/ Here is the link to purchase a copy of Tanita Allen's book: We Exist
-
DNA Repair in HD with Dr. Joseph Hamilton
01/02/2024 Duration: 28minPlease visit the Hereditary Disease Foundation website to find out more information.
-
@thehdhun with Charlotte
25/01/2024 Duration: 24minIf you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhun Instagram handle - @thehdhun TikTok - Click Here
-
HD Uncut, Ep. 11, with Dina De Sousa
18/01/2024 Duration: 34minHD Uncut, Ep. 11, with Dina De Sousa
-
HD Charge with Dr. Jamie Hamilton
11/01/2024 Duration: 38minJamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease.
-
-
-
Livable Lives with Christy Dearien
21/12/2023 Duration: 21minIf you'd like to follow Christy on social media, you can find her here: Facebook - www.facebook.com/ChristyDearien Instagram - @christydearien
-
Welcome to Help 4 HD, Anna Lunsford!
14/12/2023 Duration: 19minIf you would like to send your resources and tips and tricks to Anna for our new database, please go to the Help 4 HD website - www.help4hd.org - go to Contact Us and submit. Anna is regularly checking submissions through the website. You can also send it directly to her email at anna@help4hd.org
-
Help 4 HD 2023 with Katie and Katrina
07/12/2023 Duration: 26minFor more information about all that Help 4 HD is doing, please visit the website - www.help4hd.org
-
Coping During the Holidays with Melissa W.
30/11/2023 Duration: 55minCoping During the Holidays with Melissa W.
-
HD Uncut Series, Ep. 9
16/11/2023 Duration: 34minLauren shares her feelings about the holidays and her recent birthday.
-
Vico Therapeutics
09/11/2023 Duration: 23minDr. Katja Obieglo joins Lauren to talk about the research Vico Therapeutics is doing. To learn more, please visit their website here.
-
HD Community Advisory Board with Jenna Heilman
26/10/2023 Duration: 40minIf you'd like to learn more about HD-CAB, including how to become a member, please visit the website here. You can also contact Jenna Heilman at jenna@hdyo.org.
-
HD Mythbusters: Generation HD2
12/10/2023 Duration: 43minRita Gandhy is a movement disorders neurologist and comes with over 4 years of experience at Roche/Genentech. Prior to her current work in USMA, Rita led the Study Review Team for a planned tominersen study in late onset Huntington's Disease, being responsible for developing the protocol and study set up. Before USMA, Rita was in the Product Development OMNI LEAD safety group as Safety Medical Director leading the safety strategy for the initiation and execution of a number of therapeutic areas including the anti-tau molecule semorinemab. Rita obtained her undergraduate degree in theology and biology from University of Rochester, and her Medical Degree at Southern Illinois University School of Medicine. She completed her internship at Illinois Advocate Masonic hospital in Chicago, a year of Physical Medicine and Rehabilitation at Stanford and neurology residency at the University of California, San Diego. She has an additional neurology subspecialty training in movement disorders from Georgetown University. S