Help & Hope

See Me, Not My Disability - A Conversation with Tim Merkel

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Synopsis

How do you pursue your dreams when congenital muscular dystrophy threatens your independence? When you are born with muscular dystrophy, you face a life of muscles breaking down and unable to keep up with growth spurts. During a normal growth spurt, Tim’s spine curved so rapidly that without a full spinal fusion he would die. At fourteen years of age, Tim had a fourteen-hour surgery to straighten his spine. Tim describes how the post surgical excruciating pain led him to question God’s wisdom and love. He had to relearn to walk and cannot walk without assistance to this day. But instead of turning inward into a bitter, young man, Tim persevered through a year of pain and rehabilitation that helped him learn to walk with assistance. The recovery period gave him time to think through his goals of pursuing a life of purpose. His dream to attend a university away from home seemed impossible, but Tim persevered and successfully learned how to navigate the streets of Philadelphia, Pennsylvania, while attending Drex