Celiac Straight Talk

In 2021, Beyond Celiac held a virtual mini conference entitled “Hidden in Plain Sight,” which explored the numerous experiences faced by celiac patients as they struggled to get diagnosed. This episode emphasizes the many neurological symptoms that often go overlooked as indicators of celiac disease. Panelists Gabrielle Zimmerman, Iain Croall (Ph.D.) and Nigel Hoggard (M.D.) expand upon their experiences and research in this focus area.

World-renowned pediatrician and celiac disease expert Dr. Stefano Guandalini sat down with us to answer your questions about celiac disease and the gluten-free diet. Even the most informed patients can learn something new from this episode!

In this episode, our male ambassadors discuss some of the unique challenges men face in getting diagnosed and living with celiac disease, as well as the stigma friends and family may have about the gluten-free diet.    Note: any use of the term "cross-contamination" should actually be "cross-contact."

“That advisory board concluded that race, ethnicity, age and gender can all cause delays in diagnosis, or, worse than that, a failure to diagnose at all.” Amy Ratner of Beyond Celiac, Pooja Mehta, MD, of Children’s Hospital Colorado and patient representative Jocelyn Langevine discuss disparities in diagnosing celiac disease; how they happen, why they happen, and what we can do to get more people diagnosed.

Amy Ratner and Kate Avery, MPH, of the Beyond Celiac Science Team discuss the most exciting celiac disease research published in the past year and how clinical trials for celiac disease treatments are progressing.      Note: The term "cross-contamination" used at timestamps 38:34 and 38:45 should be "cross-contact."

When it comes to getting a new diagnosis, friends can be your greatest ally or a crushing loss if they don’t understand your new needs. Our Reach Beyond Celiac Ambassadors discuss the ins and outs of how celiac disease can affect a friendship, old or new.    Note: at timestamps 17:14 and 18:33, the term “cross-contamination” should be “cross-contact.”

In this episode we sit down with Jennifer Sealey-Voyksner, co-founder and chief scientific officer at ImmunogenX, a biotech company developing latiglutenase, a potential treatment for celiac disease. Jennifer, who has celiac disease herself, discusses her journey to diagnosis, why a treatment beyond the diet is important, and how latiglutenase works.   Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/survey

Even without an autoimmune disease, parenting can be tough. But if you’re a parent of a child with a food restriction like the gluten-free diet, this episode is for you. It features our Reach Beyond Celiac Ambassadors explaining their approach to raising children with celiac disease, including planning family vacations, becoming an advocate for their kid’s health, and how to get your little one the care and food they need, whether it’s at home, at school, or at a friend’s house. 

Listen in to this thoughtful conversation between Amy Ratner of Beyond Celiac and Erica Dermer of Celiac and the Beast on some of the biggest changes in the celiac disease world since the 1990s, when Amy’s daughter was diagnosed. The pair also speculate about what the next decade or two might hold for our community.   Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/survey

In this episode we sit down with Lisa Fahey, MD and Betsy Turner, PhD from the Children's Hospital of Philadelphia (CHOP) to discuss pediatric care of celiac disease. The conversation covers topics like introducing gluten to babies at risk, helping children cope with their diagnosis, transitioning to adult care and so much more! Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/podcast

In this episode our Reach Beyond Celiac Ambassadors continue their conversation on how a celiac disease diagnosis can affect family relationships and give tips for eating together when some family members just don’t seem to understand your diagnosis. Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: https://intakeq.com/new/quudzm/WxCsVf

Our Reach Beyond Celiac Ambassadors discuss how a celiac disease diagnosis can affect family relationships and how to navigate eating safely when some family members just don’t seem to understand your diagnosis.

In this episode, Reach Beyond Celiac Ambassadors Bill, Lauren, Hayden and Clayton continue to discuss finding love when you have celiac disease.    This interview was conducted remotely and followed all COVID-19 protocols, as have all our podcast episodes filmed since the pandemic began.

In the upcoming weeks, a small group of Reach Beyond Celiac Ambassadors will sit down and talk about living with celiac disease. In this episode, Bill, Lauren, Hayden and Clayton discuss finding love when you have celiac disease.    This interview was conducted remotely and followed all COVID-19 protocols, as have all our podcast episodes filmed since the pandemic began. 

In this edition, Beyond Celiac CEO Alice Bast sits down with Kari Wells, producer and former cast member on the Bravo show Married to Medicine. They dive into Kari’s celiac disease journey, discuss the benefits of travel, offer advice for the newly diagnosed, and reflect on what has improved in our community over the last 20 years.    Note: This episode and all episodes released in 2021 have been filmed over video chat in accordance with COVID-19 social distancing protocols. 

In this episode of the Celiac Straight Talk podcast, Beyond Celiac CEO Alice Bast sits down with Miss Kansas USA Gracie Hunt as she recounts her transition from competitive athletics to the world of pageantry, and how her celiac disease journey has influenced her decisions along the way. This introspective conversation on unwanted, unexpected change and the stigma surrounding celiac disease has insights for anyone struggling to come to terms with a life that they could never have predicted. 

Beyond Celiac CEO Alice Bast and Chief Scientist and Strategy Officer Dr. Salvatore Alesci sit down with News Reporter Diana Rocco to discuss the Beyond Celiac strategy for finding treatments toward a cure for celiac disease by 2030.   To Beyond Celiac, a cure means those with celiac disease can live healthier lives and eat without fear. Our mission has evolved to one of advancing the science of celiac disease because we firmly believe that with a strategic approach to funding-focused research, an effective treatment or cure could be possible by 2030. With your support, Beyond Celiac will be the catalyst for the next wave of practical celiac disease research efforts.

Welcome to season three of the Beyond Celiac podcast, Celiac Straight Talk! We're excited to bring you more stories, research, and news about celiac disease. Our first guest is Jessica Kapusta, an entrepreneur who's putting her experience with celiac disease to good use by developing delicious gluten-free sauces. COVID-19 put a hold on manufacturing, but you can get a sneak peek at the taste with her new cookbook, John + Jane's Sauces (excerpt below). What led her to start her own food business? What were her barriers in getting diagnosed with celiac disease? And what did preliminary taste tests of the sauces reveal? Click the play button and find out!   John + Jane's Sauces: Pow Pow Sauce Ingredients: 1 cup mayo 1 tbsp hot sauce, chili oil, or red pepper flakes. Adjust quantity for heat preference 2 tbsp lemon juice 2 tsp garlic powder 1 tbsp gluten-free soy sauce 2 tsp maple syrup (can substitute honey, another sweetener, or leave out to make sugar-free) Step 1 and done: whisk all the ingredients togethe

The first podcast of 2021! In this episode director of communications, Claire Baker spoke with Courtney and Mitchell Gaer about celiac disease in their family. Courtney speaks on her experiences as a mother caring for a child with celiac disease and the journey of how Mitchell was finally diagnosed. Mitchell speaks about what it's like being diagnosed and living with celiac disease as a young man. He is now in college and offers great advice on successfully living gluten-free as a college student. We also touched on non-celiac gluten sensitivity (aka gluten intolerance) which they believe Mitchell's younger brother has. We thank the Gaer family for sharing their story with us as it offers great insight and advice for those whose lives are affected by celiac disease and gluten intolerances. 

We discussed Dr. Nadeau’s new book, The End of Food Allergy which is out now. Dr. Nadeau, who is on the Beyond Celiac Scientific Advisory Council answered viewer questions from the live stream and held a great conversation about different food allergies and diseases including...you guessed it! Celiac Disease. Download the Celiac Straight Talk Podcast on Itunes, Stitcher and Google Play Now!