Celiac Straight Talk

The Gluten Free Destinations blog has become popular for those traveling on a strict gluten-free diet. Suzanne, the owner of the blog recently sat down with Beyond Celiac to share her experiences eating gluten-free around the world. She shares her own celiac disease story, tips and tricks for traveling on a gluten-free diet and more. You can find her Gluten Free Destinations blog HERE. Thanks to Suzanne for coming on! We enjoyed the conversation and hope you do as well. Enjoy. 

Emma Leger was a part of Beyond Celiac's very first summer intern council (SIC) for college students. She was a big hit when she shared her story on Instagram as part of the SIC Instagram takeover, so we're thrilled that her and her mom came back to share their story on the podcast. We covered what its like being a parent of a child with celiac disease, what its like growing up with celiac disease, challenges faced while attending college on a strict gluten-free diet, Emma's experience working with Beyond Celiac, and lots more! Big thanks to Emma and her mom for coming on! We hope you enjoy.

In episode 23 of the Celiac Straight Talk podcast we welcomed Julie Kennedy, registered dietitian and owner of Julie Kennedy Nutrition. They discuss Julie's journey with celiac disease, her work as a registered dietitian and her connection to Beyond Celiac. Julie can be found on her website Juliekennedynutrition.com and on social media @Juliekennedynutrition. We really enjoyed this one and hope you do too! For all of your celiac related information please visit BeyondCeliac.org.

Beyond Celiac is taking our entire 2020 Step Beyond Celiac 5K series to the virtual streets with a multi-city tour for individuals and teams across the country to support celiac disease research efforts. Five event dates are planned between August and October! Join us for one or many with our 3 and 5 city tour options. The Step Beyond Celiac 5K is a family-friendly event and fundraiser for Beyond Celiac. We encourage all participants to raise funds by running or walking 3.1 miles either in the event cities or right where you are in support of research efforts for treatments and a cure. Lace-up your running shoes, train, raise money, and run (or walk) a 5K (3.1 miles) to improve the quality of life for children and adults affected by celiac disease. All participants receive a Step Beyond Celiac 5K shirt if they register before the t-shirt deadline. 2020 5 City Tour 5k Schedule: Boston –  August 9 – 16 Kansas City – September  13  – 20 Philadelphia – September  26 – October 3 Dallas – October 10 – 18 Denver –

We talked with Michael Savett of the popular Gluten Free Philly blog. Beyond Celiac Director of Communications Claire Baker talks to Michael Savett of Gluten Free Philly about gluten-free life, his son's journey growing up with celiac disease and getting gluten-free goodies at Philly stadiums.

Asia shares her personal story with celiac disease. Find out what its like being 18 years old living with celiac disease. Asia addresses some of the unseen struggles that many people face while living with celiac disease. 

Part 2 On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists. Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease. Listen as the patient panel share their stories about what its like living with celiac disease. Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease. Your story is the missi

On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists. Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease. Listen as the patient panel share their stories about what its like living with celiac disease. Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease. Your story is the missing piec

In this podcast, the Beyond Celiac book club (Claire, Amy Maria and Bill) discussed In Memory of Bread by Paul Graham. A funny, poignant memoir of one man’s struggle to come to terms with his celiac disease diagnosis, forcing him to reexamine his relationship with food. This podcast was taken from the live zoom discussion held on the Beyond Celiac facebook page. The video can be found here. 

This is a special Beyond Celiac Book Club (BCBC) edition. The discussion is on the book I Contain Multitudes: The Microbes Within Us and a Grander View of Life by Ed Yong. Video of our May 20th discussion can be found on our facebook page. Enjoy!

Claire and Arturo Chacon Cruz chat (and sing) about his experiences with celiac disease, life during the pandemic, celiac awareness month and more. Audio taken from their Facebook live video from May 19, 2020. 

Valerie is on Beyond Celiacs patient and family advisory council. She is a Junior at Vanderbilt University and has celiac disease. In this weeks podcast Valerie talks about her journey getting diagnosed with celiac disease and the challenges she faced when looking at colleges. 

Claire chats with Lindsey about her experiences with celiac disease. Both her and her young daughter have celiac disease. The conversation covers diagnosis, kids, family life and challenges faced.  Beyondceliac.org

Beyond Celiac Book Club (BCBC) Edition A special Beyond Celiac book club discussion! The group read and reviewed brain on fire by Susannah cahalan. Audio taken from their live discussion on April 15th which can be found on the Beyond Celiac facebook page. 

Kate and Amy did a facebook live to discuss two new surveys that are out now on the Go Beyond Celiac Database and app. They also talked about other subjects related to the Beyond Celiac science team.

Dr. Salvo Alesci returns to discuss treatments in the pipeline for the coronavirus as well as new coronavirus surveys on our Go Beyond Celiac database and app!

Salvatore Alesci, MD, PhD Beyond Celiac Chief Scientist and Strategy Officer gives his take on how the coronavirus is affecting those with celiac disease. Stay healthy. Stay informed. Stay Engaged. Audio taken from Dr. Alesci's facebook video which you can watch on our Beyond Celiac facebook page and our website.  Send your feedback, comments or questions to podcast@beyondceliac.org.

Amy interviews Dr. Alan Ehrlich. Dr Ehrlich is a family physician and chair of the board of Beyond Celiac who has celiac disease himself. He is also on the faculty at the University of Massachusetts medical school in Worcester, Massachusetts. Send your feedback, comments, or questions to podcast@beyondceliac.org. 

March 11th, 2020 In this podcast our in-house experts sat down to address concerns regarding the coronavirus and people living with celiac disease. Are they more at risk? Later we took questions from followers related to the coronavirus and answered them live. The audio was taken from our March 9th Facebook Live which can be viewed on our website (Beyondceliac.org) or on our Beyond Celiac facebook page. The coronavirus situation is rapidly changing and evolving. Stay tuned and up to date by checking our coronavirus page on our website.  Send your feedback, comments, or questions to podcast@beyondceliac.org.  Sign up to receive Beyond Celiac research news at: https://www.beyondceliac.org/research/sign-up-to-receive-research-news/

Nancy Falini, MA., RDN, LDN Nancy holds a Bachelor of Science Degree in Dietetics and a Master of Art Degree in Nutrition Education from California State University, Chico. Her internship experience took place at both a community hospital and a metropolitan childrens' hospital in California. Nancy Patin Falini, a registered dietitian, licensed dietitian nutritionist, national  speaker, author/writer, and consultant is the founder/owner of Nutritional Graces, LLC. By incorporating nutrition and synergistic lifestyle modifications she has for decades educated, counseled, coached, conducted public speaking and consulting for organizations to promote holistic healing and health. Visit Nancy's website www.nutrionalgraces.com Email Nancy at nfalini@verizon.net In this podcast we discuss Nancy's background with celiac disease and gluten sensitivities and answer some "is it gluten-free" questions from our followers. Send your feedback, comments, or questions to podcast@beyondceliac.org.  Sign up to receive Beyond Cel